guarantee of health is like having to unlearn a previous life. The implications for your working life
may seem intimidating.
There is the disability Discrimination Act (DDA), of course. But does it really provide the
protection in the workplace that parliament intended? Are employers merely paying lip service to
the DDA? Or are they even aware of an employer’s legal duties and responsibilities?
In my experience, it is the latter. I have received little support from employers to whom I have
revealed my condition. This has often left me feeling at a disadvantage and wondering why I
bothered doing so in the first place.
I had been struggling with illness long before I was diagnosed. In practical terms the diagnosis
did little to aid me. Of course, it enabled me to understand my body, my limitations and set me on
a course to stabilize my symptoms. But it brought a new dilemma. Where I had previously
struggled to work while ill, ignorant of why my body was misbehaving, I now had a name for my
daily struggle: Lupus ( 狼疮). This is a chronic (慢性的), auto-immune disorder that can affect
virtually any system in the body. It also leaves a huge, dark question hanging over my head when
seeking employment: should I tell my employers I have a condition? It is a dilemma that continues
to be a root cause of anxiety both for myself and for thousands of other UK employees.
The rocky road to my unfortunate enlightenment about work and disability began just after
graduation when I’d set my sights on a career in communications and landed my dream job with a
respected public relations consultancy (咨询公司) in Bristol. But while I was learning the art of
media relations, my body wasn’t quite making it in health terms. I often went to work with
swollen limbs and fevers. At my first and last performance review, my boss was amazed that,
despite my many capabilities, I hadn’t quite taken control of my responsibilities. A few months
later, my contract wasn’t renewed and I plunged further into new depths of ill health.
However, I was determined not to be beaten and returned to the interview trail. My next job
was in publishing. But despite a shining performance at the interview, I felt like a fraud. How long
would it be before I sank into ill health and depression again?
The job was to end with a monumental bang when I became so poorly I could no longer
function. A few feverish weeks in bed ended in a specialist appointment, where I was diagnosed
with Lupus and rushed into hospital for fear that it may have attacked my internal organs.
The next 12 months were filled with confusion. I had no idea about benefits, felt alienated (被
视为另类) by the medical establishment and lived off my savings until I was broke. I realized I
needed help from my family and moved to London.
As soon as I felt better, I marched into a marketing recruitment consultancy and, within 10
minutes, I had impressed the interviewer enough to be offered a job with the agency. We agreed
on a decent salary and I told him had arthritis (关节炎) and would need to work a four-day week.
Things went well at the start but soon the client meetings began to fall on my day off, and I
rarely left the office on time. I began to slip both in health and professional terms. The 10-hour
days crashed around my head; no amount of make-up could disguise my ill health as I battled
against the odds to prove to myself that I cold still make it in the business world. I often cried on
the bus on the way back from work.
Not long before my contract was due to be made permanent, I was called to the boss’s office
and given the “talk” abut how my performance was slipping, how awful I looked. I felt too weak
to fight back and agreed to leave. No attempts to offer adjustments to my job, such as being able to
work from home, were ever made. I had a case for unfair dismissal under the DDA, but was